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I have been on Gleevec now for 6 months and in that time I have had maybe 5 well days, the other days have been filled with vomiting, nausea, body aches & pains, migraines, lethargy, insane amounts of facial swelling and my weight is just up & down like a yoyo, varying from 82kilos down to 75. I now realize that when I said this wasn't the right medication for me 5 months ago I was right. Today my hematologist told me that my Philadelphia gene is unacceptably high, so now I am going to try something else. I am delighted to hear that others are doing so well on it but it certainly wasn't for me



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Having said that, we see each I just want to remind everybody, each week the number of prescriptions is going up and the number of prescribers is going up.

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